Often asked: How Do Orthopedics Help People With Spina Bifida?

How do doctors treat spina bifida?

Treatment after birth may include ongoing surgery, medications and physical and behavioral therapy, depending on the type and severity of the defect, your child’s age and overall health as well as personal preferences. Children with the mildest form of the disease, spina bifida occulta, usually don’t need treatment.

How can I help someone with spina bifida?

Finding Support

  1. A Spina Bifida Association (SBA) Chapter is a great place to connect with other families. The SBA website can provide information on how to find a local chapter.
  2. Connect online with others.
  3. National Resource Center Get information and find clinics or health care providers who are experts on spina bifida.

How do patients with spina bifida present clinically?

Spina bifida complications may include: Abnormal sensation or paralysis, which mostly occurs with closed neural tube defects and myelomeningocele. People with these conditions typically have some degree of leg and core muscle weakness and loss of feeling in the groin and feet or legs.

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What is the life expectancy of someone with spina bifida?

Generally, medical professionals state that about 90% of patients with SB will live past their third decade of life. However this number has increased over the years because of improvements in medical technology so it has increased the life expectancy of patients born with spina bifida.

Is spina bifida a disability?

If your family has limited income and resources, your child with spina bifida will likely qualify for SSI disability benefits. Spina bifida is a disease that affects children and can be very disabling. If your child has spina bifida, he or she may qualify for SSI disability benefits by applying through Social Security.

Does spina bifida affect the brain?

Some babies with spina bifida have hydrocephalus (excess fluid on the brain), which can damage the brain and cause further problems. Many people with spina bifida and hydrocephalus will have normal intelligence, although some will have learning difficulties, such as: a short attention span. difficulty solving problems.

Can you live a long life with spina bifida?

Because of improved medical care, especially urologic management, people with spina bifida are living long lives and changing the way medical professionals think about the condition, said Dr. Dicianno.

Does spina bifida get worse with age?

Spina Bifida in Adults Adults who have spina bifida face different problems than do children, including: Normal aging process including loss of muscle strength and flexibility, less physical stamina, and a decrease in sensory abilities tend to decline faster or more sever for adults with SB.

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What is the main cause of spina bifida?

Doctors aren’t certain what causes spina bifida. It’s thought to result from a combination of genetic, nutritional and environmental risk factors, such as a family history of neural tube defects and folate (vitamin B-9) deficiency.

Is spina bifida hereditary?

Most cases of spina bifida are sporadic, which means they occur in people with no history of the disorder in their family. A small percentage of cases have been reported to run in families; however, the condition does not have a clear pattern of inheritance.

Is spina bifida progressive?

Although spina bifida is usually present at birth, it occasionally is first seen during adolescence. The rapid growth during this time stretches the shortened nerves and may cause progressive weakness.

Does spina bifida affect height?

Adult height is known to be limited in those with spina bifida. One study demonstrated that the mean adult height of men with spina bifida was 152.1 ± 13 cm, and in women adult height averaged 141.9 ± 12 cm, far below the average height for healthy adults of 176 cm and 163.5 cm, respectively [18].

Does spina bifida shorten life?

The death rate from age 5 to 40 years in people with treated open spina bifida is 10 times the national average. Many deaths are sudden and unexpected. Survival to age 40 can be predicted from the neurological deficit at birth.

Can a baby born with spina bifida live a normal life?

This can cause physical and mental issues. About 1,500 to 2,000 babies of the 4 million born in the U.S. every year have spina bifida. Thanks to advances in medicine, 90% of babies who have this defect live to be adults, and most go on to lead full lives.

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At what stage does spina bifida occur?

Spina bifida occurs during the third and fourth weeks of pregnancy when a portion of the fetal spinal cord fails to properly close. As a result, the child is born with a part of the spinal cord exposed on the back.

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